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Members Stories - George Bailey-Haigh - The Founder of Liver Transplant Support

George and Banshee
George Bailey-Haigh - The Founder of Liver Transplant Support
My first thoughts that something was definitely wrong with me became apparent on a holiday to Cornwall and Devon. Visiting Boscastle, a pretty fishing harbour nestling in a deep valley. Once we had looked round there was a coastal path that had to be climbed. It was on this ascent to the top to admire the view that I became extremely breathless and for the first time ever just had to stop to try to calm myself. This was exhaustion like I had never really experienced before.

On my return from my vacation I started investigations into the cause of the shortness of breath. At Southampton General Hospital blood tests and ECG's including a cardiac catheter showed mitral valve regurgitation. This was not the reason for my condition. I was then referred to the hepatology unit and they started more in-depth investigations. Firstly CT scans and ultrasounds of my abdomen. Then booked into Nuclear Medicine whereupon there was seen to be a problem detected with my blood.

Not a lot of information was given to me at this time but, just to frighten me a bit, I was asked to attend tests for hepatitis and have an Aids test. The waiting period for these results took all attention away from my day-to-day tasks. A negative result was recorded, so back to Nuclear Medicine for a syringe injection with X-ray tracking to reveal where the blood was going (arterial shunting).

The results of this showed that I had Hepato-pulmonary shunting syndrome type A, a degenerative disease of the liver that was causing my blood vessels to close down and gradually starve the liver of blood. New blood vessels were being formed but these were by-passing my lungs and going back to my heart with deoxygenated blood and slowly but surely I was gradually being starved of true oxygenated blood throughout my body.

My hepatology consultant sat me down on more than one occasion and advised that my situation was not going to be resolved by drugs and told me that liver transplant was my only chance of survival. He wrote to King's College Hospital, London.

Three months later I attended assessment tests and after two weeks was given the choice to have a transplant. Even though all the lead-up to this point had taken well over two years, the time given to contemplate such an operation was very short.

Two years if I am lucky was their prognosis. I guess they and my GP and partner & friends had made my mind up for me!

My new liver became available by a phone call to me at ten minutes to midnight on my birthday, one present I did not expect that day. I was transplanted the next day at 11.30 am.

My recovery was fraught with many complications which resulted in me being in hospital for three months and then discharged but listed on the re-transplant list as they were unsure if this liver would be capable of doing its job.

Now three years on and no re-transplant, I am doing very well. I have total admiration for all the staff at King's for their persistence and expertise. Huge thanks for all my loved ones for their unrelenting support and kindness. The biggest thanks go to my donor's family for their unselfish act and the wishes of their daughter to give life after her death. Without these acts of kindness many of us would not be here today.

I have much to pass on but if I had just one piece of advise I can give following my experience, it would be….BE AN ORGAN DONOR!

 

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